Thursday, June 26, 2008

Or not...

Why do I bother?

Well, we went today for Little's echo and we didn't get good news. Her heart appears to have gotten a bit larger...showing a worsening in the function...and they're talking surgery now.

The good news is that the surgery they will do is to put another wire onto her heart from her pacemaker (to the right side of her heart, whereas just the left side is paced right now...it's called bi-ventricular pacing) and they think that it will really help increase the function of her heart...possibly even make it all better...but let's not get our hopes up now. (We've all seen what happens when we do that ::insert eye roll here::) But we do have hope, because...you know...we have to.

I'm not sure when exactly the surgery will be, as the cardiologist has a few surgeons that she wants to talk to before scheduling it (because Little is the youngest patient she's ever seen be a candidate for this kind of pacing) but she said definitely in the next 6 months. We told her that if they make the decision to go ahead, we want the surgery ASAP, like in July. She thinks that the sooner we have it, the more likely it is that the damage to her heart will be reversible and/or give her a lesser chance for needing a transplant down the line. (Umm, can we have it tomorrow in that case?!) We should get a for sure yea or nay next week.

I think someone up there needs a hearing aid.

2 comments:

Rebecca said...

Big hugs! Sorry the appointment was rough! I was really hoping you'd get better news. I wish I had something really profound to say that would make it all better, but I know that I don't. My thoughts & prayers are with you though..

bellebearberry said...

Oh Jenny - I so hope this next surgury is the key that creates a healthier heart for her. Continued prayers , for ALL of you

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